Patient Advocate & Coach – Amatuer Triathlete – Financial Adviser – Productivity Enthusiast
https://youtu.be/ZdPJu67fqMM If you've followed my new blog this year, you might have noticed that I recently changed the name of it to The Spoonie Ironman. And now that I have been asked more than a few times what it means, I figured I would write a short blog to answer the question on here officially.… Continue reading Why The Spoonie Ironman?
Since I've lived just outside of the New York City area, I've always thought of the New York Times as my home newspaper. And while I will not be getting into any political discussions about the NYTimes, I am going to discuss a recent advice column that basically said a young woman should be very… Continue reading NYTimes Advice: Don’t Date Someone With A Chronic Illness
https://videopress.com/v/gvRKjje4?preloadContent=metadata 5 FAQs About IBD There are many misconceptions about Crohn’s disease and ulcerative colitis. It’s on all of us to educate the world that these are more than just a bathroom disease. It impacts us in countless ways and none of them should be minimized. Both Crohn’s and ulcerative colitis are unpredictable diseases,… Continue reading
For a few years now, I've incorporated meditation into my life. Fact: When I meditate, I feel better. Fact: When I don't meditate, I feel worse. It's that simple for me, and it could potentially be that easy for you. More and more podcasts and articles are sharing the scientific results on how meditation can… Continue reading Stress, Chronic Illness, and My Experience With Meditation. Including A Podcast From Hal Elrod Of The Miracle Morning.
Today is May 1st, 2020, and the COVID-19 pandemic continues to spread within our communities and around the world. As many of us are taking the proper precautions and sheltering in place until the outbreak dies down, it will be impossible to sustain this lifestyle forever. While many of us are used to staying in… Continue reading The World Just Got Even Smaller For Spoonies With COVID-19
Without a doubt, we're living in a unique time in world history since modern medicine was developed. Many of us weren't thinking that a worldwide pandemic would happen anytime soon, but here we are, quarantined with a stay at home order for a majority of us. During this time, it is natural to watch the… Continue reading Why The Most Important Number During The COVID-19 Pandemic Is 100% – 4 Min Read
I'm not going sugarcoat anything when it comes to traveling with a chronic illness. There is always anxiety that comes with being farther from home. One of the worst parts, it never goes away. When we aren't doing well, the anxiety is always going to be high. And when we are doing well, the fear… Continue reading A Traveling Spoonie – Anxiety Never Goes Away
Disclosure: AbbVie paid for my travel and expenses and compensated me for my time to attend this event. AbbVie is also sponsoring this post, but all opinions and thoughts are my own. It’s hard to put into words what it feels like to return home after an event like the IBD Warrior Challenge hosted by Abbvie to… Continue reading AbbVie IBD Warrior Challenge Event
I was lucky enough to be invited down to Orlando to take part in a fantastic event which I will talk about in an upcoming post, but I wanted to take a moment to reflect on what Disney has become to me and what an incredible inspiration the entire Disney machine is. Why do I… Continue reading The Inspiration Of Walt Disney
There is a reality that one must accept when living with a chronic illness, you will miss out on life events. In no way can this reality be avoided, which is a sad truth we can’t be in denial about. This past weekend I had a stark reminder about how this feels and the fear… Continue reading Life Events & FOMO With Chronic Illness