Patient Advocate & Coach – Amatuer Triathlete – Financial Adviser – Productivity Enthusiast
https://youtu.be/ZdPJu67fqMM If you've followed my new blog this year, you might have noticed that I recently changed the name of it to The Spoonie Ironman. And now that I have been asked more than a few times what it means, I figured I would write a short blog to answer the question on here officially.… Continue reading Why The Spoonie Ironman?
I'm not going sugarcoat anything when it comes to traveling with a chronic illness. There is always anxiety that comes with being farther from home. One of the worst parts, it never goes away. When we aren't doing well, the anxiety is always going to be high. And when we are doing well, the fear… Continue reading A Traveling Spoonie – Anxiety Never Goes Away
Disclosure: AbbVie paid for my travel and expenses and compensated me for my time to attend this event. AbbVie is also sponsoring this post, but all opinions and thoughts are my own. It’s hard to put into words what it feels like to return home after an event like the IBD Warrior Challenge hosted by Abbvie to… Continue reading AbbVie IBD Warrior Challenge Event
I was lucky enough to be invited down to Orlando to take part in a fantastic event which I will talk about in an upcoming post, but I wanted to take a moment to reflect on what Disney has become to me and what an incredible inspiration the entire Disney machine is. Why do I… Continue reading The Inspiration Of Walt Disney
There is a reality that one must accept when living with a chronic illness, you will miss out on life events. In no way can this reality be avoided, which is a sad truth we can’t be in denial about. This past weekend I had a stark reminder about how this feels and the fear… Continue reading Life Events & FOMO With Chronic Illness
For most of my life, I have been a glass half full kind of person. Even though I have been dealt a rough hand to play with, I've always tried to make the best of it. Even when my quality of life was LOW, I didn't give up hope that my health would get better.… Continue reading The 24/7 Job That I Never Signed Up For – How I Manage My Chronic Illness (Intro)
PM360 Award Article This week I was one of two patient advocates that were awarded a PM360 Elite winner. It was a celebration to show appreciation for the work many have done to help others in the health sectors. It was an honor to be recognized as a patient advocate at the event. Every day… Continue reading PM360 Awards Event In New York City – 3 Minute Read
In recent years my advocacy has been less consistent than I would have liked. Life has improved, and I am soaking up being comfortable in my new normal since making my ostomy permanent. But helping others is still a massive passion of mine, and I will always do what I can. My story with Crohn's… Continue reading 70.3 for IBD – Team Challenge And The Crohn’s Colitis Foundation (Part 2) – 2 Minute Read
Every once in a while, a weekend comes along when life seems to be in perfect balance. This past weekend was an excellent example of just that for me. It combined work, golf, triathlon, friends, and good food for three straight days. So what is that combination for me? Let me sum up Friday through… Continue reading Work, Golf, Triathlons, Friends, Food Balance – 4 Minute Read
Every so often, I get asked a question that makes me reflect on my chronic illness journey. This, of course, leads me to think of all the horrible times when every day got me down, and my quality of life was low, to say the least. It also makes me think about all the good… Continue reading Finding The Right Mindset With Chronic Illness And 6 Tools That Might Help – 3 Minute Read