Patient Advocate & Coach – Amatuer Triathlete – Financial Adviser – Productivity Enthusiast
https://youtu.be/ZdPJu67fqMM If you've followed my new blog this year, you might have noticed that I recently changed the name of it to The Spoonie Ironman. And now that I have been asked more than a few times what it means, I figured I would write a short blog to answer the question on here officially.… Continue reading Why The Spoonie Ironman?
Spoonie Sunday Stroll #1: Big News & What Will Spoonie Sunday Strolls Be! Let's go for a walk together since movement is healthy and talk about everything chronic illness.
Coddiwomple - To travel in a purposeful manner to a vague destination.
https://videopress.com/v/UVffACAX?autoPlay=true&preloadContent=auto I’m buying back in and going to push my chips to the middle of the table for my advocacy in 2021. I’M ALL IN. Sadly, over the past year or so, I haven’t been able to devote as much time as I’d want to my advocacy. There were times that I managed to get… Continue reading My 2021 Advocacy Plan
https://youtu.be/7vWl0M2h-EI For much of 2013 and some of 2014 I was bedridden due to my Crohn’s disease coming back and having to make the decision to have a proctectomy which would make my ostomy permanent. After my many surgeries, the one to remove my rectum was the most difficult recovery I ever had. The pain… Continue reading An Open Letter To Mike Reilly, The Voice Of IRONMAN: My Ostomy Life Is Not A “LOUSY” Life
If you read this blog, then you probably have noticed that I follow a lot of business leaders, motivational speakers, and more to get my inspiration from. Some might find it weird that I find so many parallels between their advice or lifestyle to chronic illness. When you break down what they say and adapt… Continue reading Reality vs. Expectations With A Chronic Illness
You might have noticed that I've been fairly quiet lately on my pages and here on the blog. The reason for this was fairly simple and something we've all experienced, my health spiraling out of control despite my best efforts. Soon after the physical challenges of a flare come on, the mental challenges follow. This… Continue reading Chronic Illness Life: How I Explain What It’s Like To Live With Everyday Challenges and Questions.
Since I've lived just outside of the New York City area, I've always thought of the New York Times as my home newspaper. And while I will not be getting into any political discussions about the NYTimes, I am going to discuss a recent advice column that basically said a young woman should be very… Continue reading NYTimes Advice: Don’t Date Someone With A Chronic Illness
https://videopress.com/v/gvRKjje4?preloadContent=metadata 5 FAQs About IBD There are many misconceptions about Crohn’s disease and ulcerative colitis. It’s on all of us to educate the world that these are more than just a bathroom disease. It impacts us in countless ways and none of them should be minimized. Both Crohn’s and ulcerative colitis are unpredictable diseases,… Continue reading
For a few years now, I've incorporated meditation into my life. Fact: When I meditate, I feel better. Fact: When I don't meditate, I feel worse. It's that simple for me, and it could potentially be that easy for you. More and more podcasts and articles are sharing the scientific results on how meditation can… Continue reading Stress, Chronic Illness, and My Experience With Meditation. Including A Podcast From Hal Elrod Of The Miracle Morning.
Today is May 1st, 2020, and the COVID-19 pandemic continues to spread within our communities and around the world. As many of us are taking the proper precautions and sheltering in place until the outbreak dies down, it will be impossible to sustain this lifestyle forever. While many of us are used to staying in… Continue reading The World Just Got Even Smaller For Spoonies With COVID-19