Spoonie Sunday Strolls, Uncategorized

Spoonie Sunday Stroll #5: COVID-19 Vaccine Shot 1 & How To Make Progress By Taking Turtle Steps With Chronic Illness.

https://youtu.be/-eBIGMKRVKY Please click the subscribe button to get the latest updates, help me grow my page, and have these videos be more visible to others. In this episode of Spoonie Sunday Strolls I discuss my experience with the first shot of the COVID-19 vaccine and how making turtle steps with chronic illness can help you… Continue reading Spoonie Sunday Stroll #5: COVID-19 Vaccine Shot 1 & How To Make Progress By Taking Turtle Steps With Chronic Illness.

Uncategorized

An Open Letter To Mike Reilly, The Voice Of IRONMAN: My Ostomy Life Is Not A “LOUSY” Life

https://youtu.be/7vWl0M2h-EI For much of 2013 and some of 2014 I was bedridden due to my Crohn’s disease coming back and having to make the decision to have a proctectomy which would make my ostomy permanent. After my many surgeries, the one to remove my rectum was the most difficult recovery I ever had. The pain… Continue reading An Open Letter To Mike Reilly, The Voice Of IRONMAN: My Ostomy Life Is Not A “LOUSY” Life

Advocacy, Chronic Illness, General, Uncategorized

NYTimes Advice: Don’t Date Someone With A Chronic Illness

Since I've lived just outside of the New York City area, I've always thought of the New York Times as my home newspaper. And while I will not be getting into any political discussions about the NYTimes, I am going to discuss a recent advice column that basically said a young woman should be very… Continue reading NYTimes Advice: Don’t Date Someone With A Chronic Illness

Chronic Illness, Exercise & Activity, Mindset, Routines & Structure, Uncategorized

The 24/7 Job That I Never Signed Up For – How I Manage My Chronic Illness (Intro)

For most of my life, I have been a glass half full kind of person. Even though I have been dealt a rough hand to play with, I've always tried to make the best of it. Even when my quality of life was LOW, I didn't give up hope that my health would get better.… Continue reading The 24/7 Job That I Never Signed Up For – How I Manage My Chronic Illness (Intro)

General, Just For Fun, Triathlon, Uncategorized

Work, Golf, Triathlons, Friends, Food Balance – 4 Minute Read

Every once in a while, a weekend comes along when life seems to be in perfect balance. This past weekend was an excellent example of just that for me. It combined work, golf, triathlon, friends, and good food for three straight days. So what is that combination for me? Let me sum up Friday through… Continue reading Work, Golf, Triathlons, Friends, Food Balance – 4 Minute Read

Chronic Illness, Uncategorized

Patient To Patient Conferences Are The Best – University Of Michigan

For years I have been following Doctor Peter Higgins at the University of Michigan IBD Center. I’ve had the honor of meeting him a couple of times at various conferences for Crohn’s disease, ulcerative colitis, and ostomy related advocacy that I do. This year Dr. Higgins and his team invited me to take part in… Continue reading Patient To Patient Conferences Are The Best – University Of Michigan

Chronic Illness, Routines & Structure, Uncategorized

Winners Never Quit Isn’t True When Living With A Chronic Illness

Being a winner with chronic illness isn’t an easy task, yet it’s something that many people think should be the case when looking at those who are battling a disease. They say things like “It’s mind of matter” or “Have you tried (insert something ridiculous here)?” Meanwhile they don’t know the reality of fighting every… Continue reading Winners Never Quit Isn’t True When Living With A Chronic Illness

Uncategorized

Why Turtle Steps Are So Important With Chronic Illness

One step at a time. That’s what people say when they want someone, anyone to push just a little harder or get started on something that is outside a person’s comfort zone. I get asked all the time how I completed a full 140.6 mile Ironman with my multiple chronic illnesses and living with an… Continue reading Why Turtle Steps Are So Important With Chronic Illness