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spoonieironman

•Chronic Illness Advocate🥄
•Helping Spoonies with fitness, mental health, habits, lifestyle, & more
•Bedridden➡️Ironman🏊‍♂️🚲🏃
📍NYC
👇Blog & Resources

I'm a big proponent of systems in life. Maybe it's

I recommend jumping into the weekend like Aspen. 🐶 This will always be one of my favorite pictures. The smiles and laughs she brings to life have been getting me through every day of this pandemic. I truly don’t know how people are making it through the days without a dog by their side right now. They truly are our best friends and the best medicine. I need my daily dose of Aspen. It’s like coffee to me. ☕️ #dogsarethebestmedicine #mansbestfriend #dogsofinstagram #doodlesofinstagram #doodlesoftheworld #doodlesofinsta #goldendoodle #chronicillness #invisibleillness #anxiety #stress #depression #dailybattles #dailysmiles #spoonie #spooniesupport #dogslife🐶

#WorldIBDDay 🌎 ___⠀ Crohn's disease and ulcer

Today is a day for the Crohn’s disease and ulcer

But you don't look sick? I hear this all the time. $But you don't look sick? I hear this all the time. The truth of the matter is, I am sick and I've accepted this as my reality. Why would I accept such a thing? Because I've fought back and I've done some pretty badass stuff despite my Crohn's and ostomy. ⠀ ___⠀ So, every year on May 19th the inflammatory bowel disease community comes together to raise awareness on World IBD Day. A day to pull the curtain back and show the world that Crohn's disease and ulcerative colitis are more than the bathroom diseases many people think they are. ⠀ ___⠀ For those of you who don't know my story, I'll share the very short version with you now. First, my name is Brian and I've lived with Crohn's disease since age 11 and since I'm 37 now, that makes my IBD journey at 26 years. ⠀ ___⠀ During this time I've had countless doctors appointments, many many hospitalizations, and over 30 surgeries. The major surgeries consisted of resections which is the removal of part of my intestinal tract, ostomy surgery to create a stoma and divert my intestinal tract, and proctectomy to remove my rectum and sew that area up just like a Ken doll. ⠀ ___⠀ This all hit me like an 18 wheel truck going 100 mph when I was 19 years old during my freshman year of college. Until 32 years old my quality of life was extremely low. But during this time and others, MY Crohn's was so much more than a "bathroom disease." It impacted my entire body from head to toe, literally. ⠀ ___⠀ From hair loss at times and mental health challenges like anxiety and depression to the toes with brittle nails and low bone density leading to fractures. While the picture on the left shows me completing an IRONMAN race, the reality is on the right and some of the symptoms I experience every day, even when I'm doing well.⠀ ___⠀ I was able to go from bedridden to IRONMAN in just a few years, but it was a constant battle from a war people rarely see. ⠀ ___⠀ Invisible diseases are just that. You may think someone is doing extremely well, but behind the curtain, there is much more going on. The world needs to know what happens behind this curtain for millions of IBD patients every year. Today we raise IBD awareness for World IBD Day!$

WFH furssistant!

Just a goofy fluffy dog living her best life witho

I can't speak for everyone but the support my moth

I ran 2.23 miles today for Amaud and every time my

Spring modeling shoot!

On The Blog: The World Just Got Even Smaller For S

Hmmmmmm? I know what you’re thinking...Quarantin

Who deserves a HUGE shout out right now? CAREGIVER

This is going to be a wild roller coaster ride for

#earthday🌎 Thank you for all the amazing memori

Bored? A few days ago we did a virtual wine and pa

Like many I’m finding these days difficult for o