After all of the ups and downs of living with multiple chronic illnesses, constant hospital stays, countless surgeries, and constantly fighting challenges on a daily basis, I was given the opportunity to start a new life after my most recent surgery. I looked at this as a chance to change things, a chance to make a better life to overcome my illnesses.
It was during this time when I started to read as many books as possible, listen to as many podcasts as my ears could handle, and learn how some of the most successful people in the world live their lives. The hope was to pick up small bits of advice and things I may be able to apply to my own life.
The outcome was in my eyes incredible. As I took in as much information from every resource I could along the way, I noticed one very big thing in common. All of the systems that very successful people implement in their lives every day, Spoonies can implement too. Now there are obvious adjustments and modifications that we need to make, but the overall ideas are there. And I noticed that almost NONE of this stuff is taught or suggested to us.
These systems that I put in place allowed me to make realistic goals, create routines I could follow which then turned into natural habits, and led to a better life with all of my chronic illnesses. In 5 years I went from bedridden and living in my parents master bedroom with a visiting nurse, to crossing the finish line of a full 140.6 mile Ironman Triathlon. The key was, turtle steps and accepting them along the way.
Now I want to help other Spoonies with the systems that have not only worked for me, but other options that might work for my fellow community members as well. My philosophy is that if there are any easy steps to make life better with chronic illness, WE should be taking them.
So let’s start today. Let’s work together and figure out what systems might work well for you, and allow you to change your life. Even if it’s just a small amount to start, I promise you it will be worth it.