Advocacy, Chronic Illness, General, Triathlon

Why The Spoonie Ironman?

https://youtu.be/ZdPJu67fqMM If you've followed my new blog this year, you might have noticed that I recently changed the name of it to The Spoonie Ironman. And now that I have been asked more than a few times what it means, I figured I would write a short blog to answer the question on here officially.… Continue reading Why The Spoonie Ironman?

Chronic Illness

PM360 Awards Event In New York City – 3 Minute Read

PM360 Award Article This week I was one of two patient advocates that were awarded a PM360 Elite winner. It was a celebration to show appreciation for the work many have done to help others in the health sectors. It was an honor to be recognized as a patient advocate at the event. Every day… Continue reading PM360 Awards Event In New York City – 3 Minute Read

Chronic Illness, Mindset

Finding The Right Mindset With Chronic Illness And 6 Tools That Might Help – 3 Minute Read

Every so often, I get asked a question that makes me reflect on my chronic illness journey. This, of course, leads me to think of all the horrible times when every day got me down, and my quality of life was low, to say the least. It also makes me think about all the good… Continue reading Finding The Right Mindset With Chronic Illness And 6 Tools That Might Help – 3 Minute Read

Chronic Illness, Support Network

Why Helping Others Is The Best Drug For Chronic Illness

Recently I had three friends reach out to me at the same time for help. A friend of theirs went through hell and back due to a major surgical complication, and they thought of me. I wonder why? I have no experience when it comes to surgery. I kid I kid. In fact, I'd call… Continue reading Why Helping Others Is The Best Drug For Chronic Illness

Chronic Illness, Support Network

Guys Need To Be More Proactive Managing Their Chronic Illness – 2.5 Minute Read

“Go to the doctor” is what my wife tells me to do every single time I get a cold, allergy attack, or anything mild, and while I would love to tell her she’s right like all women are, the fact is…well, she is right. Recently I had a cold/allergy attack which lingered in my lungs… Continue reading Guys Need To Be More Proactive Managing Their Chronic Illness – 2.5 Minute Read

Chronic Illness, Exercise & Activity, Routines & Structure, Triathlon

Back To The Basics – Being Active With Chronic Illness (3 Minute Read)

Recently I posted a poll on my Instagram with a variety of topics to my followers. The winner was “Working out with chronic illness,” and even though I am an IRONMAN, I’m not in an excellent place health wise right now. For this reason, I wanted to talk about something EXTREMELY important, the BASICS. Living… Continue reading Back To The Basics – Being Active With Chronic Illness (3 Minute Read)

Chronic Illness, Mindset, Routines & Structure

Tools That I Use To Manage My Chronic Illness – 4 Minute Read

We all have days that don't go as planned. Our bodies or minds don't cooperate which makes is hard to stay on top of the tasks at hand. I've always found that following a pattern and using the resources around me allowed me to sometimes still make some sort of progress even on the bad… Continue reading Tools That I Use To Manage My Chronic Illness – 4 Minute Read

Chronic Illness, Mindset

Fearing What Is Ahead With Chronic Illness

If you know me or have followed any part of my journey you probably know I am an optimist. I've always felt like the glass being half full is the better option when taking on the challenges of living with a chronic illness. We have so much negative around us at times that it just… Continue reading Fearing What Is Ahead With Chronic Illness

Chronic Illness, Routines & Structure

Chronic Illness Job Hours – 24/7 (4 Minute Read)

Last night after I finished dinner, I was getting in some much-earned rest and relaxation after a long day of work. My brain was fried, and my body was exhausted. Then while sitting there, perfectly comfortable, and while this felt perfect, it was interrupted. My phone starts beeping and vibrating, so I reach down and… Continue reading Chronic Illness Job Hours – 24/7 (4 Minute Read)

Chronic Illness, Uncategorized

Patient To Patient Conferences Are The Best – University Of Michigan

For years I have been following Doctor Peter Higgins at the University of Michigan IBD Center. I’ve had the honor of meeting him a couple of times at various conferences for Crohn’s disease, ulcerative colitis, and ostomy related advocacy that I do. This year Dr. Higgins and his team invited me to take part in… Continue reading Patient To Patient Conferences Are The Best – University Of Michigan