Chronic Illness, Mindset

Fearing What Is Ahead With Chronic Illness

If you know me or have followed any part of my journey you probably know I am an optimist. I've always felt like the glass being half full is the better option when taking on the challenges of living with a chronic illness. We have so much negative around us at times that it just… Continue reading Fearing What Is Ahead With Chronic Illness

Chronic Illness, Routines & Structure

Chronic Illness Job Hours – 24/7 (4 Minute Read)

Last night after I finished dinner, I was getting in some much-earned rest and relaxation after a long day of work. My brain was fried, and my body was exhausted. Then while sitting there, perfectly comfortable, and while this felt perfect, it was interrupted. My phone starts beeping and vibrating, so I reach down and… Continue reading Chronic Illness Job Hours – 24/7 (4 Minute Read)

Chronic Illness, Uncategorized

Patient To Patient Conferences Are The Best – University Of Michigan

For years I have been following Doctor Peter Higgins at the University of Michigan IBD Center. I’ve had the honor of meeting him a couple of times at various conferences for Crohn’s disease, ulcerative colitis, and ostomy related advocacy that I do. This year Dr. Higgins and his team invited me to take part in… Continue reading Patient To Patient Conferences Are The Best – University Of Michigan

Chronic Illness, Routines & Structure, Uncategorized

Winners Never Quit Isn’t True When Living With A Chronic Illness

Being a winner with chronic illness isn’t an easy task, yet it’s something that many people think should be the case when looking at those who are battling a disease. They say things like “It’s mind of matter” or “Have you tried (insert something ridiculous here)?” Meanwhile they don’t know the reality of fighting every… Continue reading Winners Never Quit Isn’t True When Living With A Chronic Illness

Chronic Illness, General, Work & Finance

Why I Tried Ride Sharing With Lyft And Uber, And 4 Reasons I Think It Is Great With A Chronic Illness

There are times we can all use a little extra money in our pockets. Life can be expensive and living with a chronic illness just adds on to all the bills. This is why I wanted to see what it was like to drive for Lyft and Uber recently, and why I wanted to share… Continue reading Why I Tried Ride Sharing With Lyft And Uber, And 4 Reasons I Think It Is Great With A Chronic Illness

Triathlon

4 Reasons Triathlons Changed My Life With Chronic Illness

I know what you're thinking...Oh no, not another person who is preaching a way of life like Crossfit, Beach Body, or some other fitness program right? Before you stop reading, I want you to just take a minute to read on and hear why triathlons changed my life and gave me structure to manage my… Continue reading 4 Reasons Triathlons Changed My Life With Chronic Illness

Uncategorized

Why Turtle Steps Are So Important With Chronic Illness

One step at a time. That’s what people say when they want someone, anyone to push just a little harder or get started on something that is outside a person’s comfort zone. I get asked all the time how I completed a full 140.6 mile Ironman with my multiple chronic illnesses and living with an… Continue reading Why Turtle Steps Are So Important With Chronic Illness