Advocacy, Chronic Illness, General, Triathlon

Why The Spoonie Ironman?

https://youtu.be/ZdPJu67fqMM If you've followed my new blog this year, you might have noticed that I recently changed the name of it to The Spoonie Ironman. And now that I have been asked more than a few times what it means, I figured I would write a short blog to answer the question on here officially.… Continue reading Why The Spoonie Ironman?

Chronic Illness, Mindset

Finding The Right Mindset With Chronic Illness And 6 Tools That Might Help – 3 Minute Read

Every so often, I get asked a question that makes me reflect on my chronic illness journey. This, of course, leads me to think of all the horrible times when every day got me down, and my quality of life was low, to say the least. It also makes me think about all the good… Continue reading Finding The Right Mindset With Chronic Illness And 6 Tools That Might Help – 3 Minute Read

Chronic Illness, Support Network

Why Helping Others Is The Best Drug For Chronic Illness

Recently I had three friends reach out to me at the same time for help. A friend of theirs went through hell and back due to a major surgical complication, and they thought of me. I wonder why? I have no experience when it comes to surgery. I kid I kid. In fact, I'd call… Continue reading Why Helping Others Is The Best Drug For Chronic Illness

Chronic Illness, Routines & Structure

Chronic Illness Job Hours – 24/7 (4 Minute Read)

Last night after I finished dinner, I was getting in some much-earned rest and relaxation after a long day of work. My brain was fried, and my body was exhausted. Then while sitting there, perfectly comfortable, and while this felt perfect, it was interrupted. My phone starts beeping and vibrating, so I reach down and… Continue reading Chronic Illness Job Hours – 24/7 (4 Minute Read)

Chronic Illness, Uncategorized

Patient To Patient Conferences Are The Best – University Of Michigan

For years I have been following Doctor Peter Higgins at the University of Michigan IBD Center. I’ve had the honor of meeting him a couple of times at various conferences for Crohn’s disease, ulcerative colitis, and ostomy related advocacy that I do. This year Dr. Higgins and his team invited me to take part in… Continue reading Patient To Patient Conferences Are The Best – University Of Michigan